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Showing posts with label facebook. Show all posts
Showing posts with label facebook. Show all posts

Tuesday, 24 May 2011

Attention Educators: Stop Bullshitting Me (Part 1)

Posted on 19:56 by tripal h

I think educators think we [parents] are stupid.

However, I would like to remind them all [teachers, principles, aides and administrators] that as a professional counselor it is my job to see through people’s bullshit. And lately I have been wading in a lot of that.

I have tried to be nice, like Peter Wright suggests... but I have had my fill of social etiquette this year.

(For those of you who don't know: The district is moving our autistic daughter from her current building to the home building based on residency because of 'district growth challenges' or so they say... and we have let them know we do not approve. She is not only flourishing but has built friendships with the kids in her grade level.)

Anyways, the principle out right lied at the IEP meeting stating that the 'administrative team' reviewed her records and the decision was based on her excessive tardiness... "REALLY? because I put her on the bus on time every day this year; she better have gotten to school ON TIME". Of course her school record confirm that she was NEVER late to school. So we were told about 3 more songs and dances on why she couldn’t stay in the building where she was not only established, but flourishing!

What is interesting, we know there are other children in this same building who are not in their home building... and yet they did not get the same letter that we were told was 'standard' and sent to all students not in their appropriate building based on residency.

But the thing that bothered me the most... was the teacher I lovED and respectED didn’t correct the principle in her tardiness accusations... she sat there wide eyed and didn’t say a word... until the principle left the room. THEN she whispered, “She has never been tardy!!” Why didn’t you speak up when the principle was ‘arguing’ with me about this? I thought you were supposed to be Sahara’s advocate. (3 professionals you work with told me you have 'pull' with the district and could advocate for her to stay... so why aren't you??)

Then the therapist and teacher refused to add accommodations into the IEP that support these statements.... “she reads better with the lights off” (sensory issues) AND “she does better in OT with fine motor activities (like writing) when she does Brain Gym first”.

When I tell you I am unhappy about this not being in the IEP I get the response, “they will figure it out.” That Is not only an unprofessional statement, but unacceptable.

My poker face went out the window weeks ago, so you add, “well, Sahara just might tell them herself.”

Seriously?!?!

The child still often speaks in jargon and you are going to expect that level of verbal communication from her? Yet alone that is not the child's responsibility!!

“I thought you said you were going to relay that to the new team yourself?”

"Oh yeah I will” [big cheesy smile]... pardon me I think you are bullshitting me again!!!

This makes me wonder how much more bullshit you dealt out this year. Unfortunately, I will never know since my daughter has gross communication and language delays. But I wonder about the rides home when she said, “Sad... school... sad” as she whimpered. Or the day she came home saying, “Arm hurt....” And when I asked about it ‘nothing’ out of the ordinary was reported.

If you cannot speak your truth in front of the principle or directly to me when confronted.... I wonder how truthful you have been all year. So maybe, just maybe... once again, God is protecting Sahara by having her forced to move on from this building.

I know I have been very verbal about this on facebook lately... that helps me process. And I knew I would eventually get to the silver lining... I think I got there today.

I really was hoping for different outcomes... but time to move on. So, we are agreeing (as if we had a choice) to put her in the home building under the contingency that if we note ANY regression, we are reconvening the IEP team! And I WILL have my head so far up the new team's butt... they will be crossing every T and dotting every I for me next year. I will not let my guard down nor get all buddy-buddy with the new team. They are being hired by me to do a job... and I will make sure they are doing it.

So we end the school year bitter sweet.... you just heard the bitter.

The sweet is Sahara has made HUGE HUGE HUGE progress this year. She has bloomed socially and academically (reading, writing and doing math!!). If I see any hint of regression in the new setting I am no longer afraid to go to bat for this kid!! And again as an educated mother who has worked in the education and counseling fields... I am not hesitant on pulling her and home schooling. She deserves that and much more!

((Stay tuned for part 2 on Stop Bullshitting Me... Part 2 on Emily's adventure!))

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Posted in autism, Education, facebook, IEP, politics, sensory issues, speech therapy | No comments

Wednesday, 8 December 2010

AWN: Crucial support to women, teens, girls and families on the autism spectrum

Posted on 05:45 by tripal h

The Autism Women’s Network (AWN) offers crucial support to women, teens, girls and families on the autism spectrum... please take a moment today to read this and take action to let them know that not only does the autism community appreciate their efforts, but so do others.


For the past several months I have posted a link on my Facebook and Twitter page daily for the The Autism Women’s Network’s chance to win a $50,000 grant to help females on the autism spectrum in the Pepsi Refresh Project...


While this is a very important cause to me, I am sure that it is probable that many of my mainstream friends roll their eye as I continue to ask for their support! It is even likely that many will be relieved to hear this will be the last month that AWN will enter this contest.


Over the past few months, by participating in the self-driven need to promote this project, I have been warmly accepted as a mother representing her non-verbal six year old daughter among this community of self-advocates. As my interest in this project strengthened so did my report with several of the women from AWN.

I discuss why I value this project (HERE) and (HERE).

In short, I have a daughter on the spectrum that was not diagnosed until after years of pleading with professionals to listen. (I am certain that her gender played a role in the lack of attention to our continuous concerns.) I also recognize that females are underserved and represented in the presentation of the spectrum.

It isn’t that I ignore male issues on the autism spectrum; I just have a vested interest in female issues because that is my reality. My goal in supporting Autism Women’s Network is simple:

To get the support my children and I need on a personal level. And to globally help girls, teens and adult women (and their families) to get the support and education they need, to prevent abuse, and to promote early intervention for females.

So, how will this project help?

Project Overview:

The Autism Women's Network is unique in that it was founded by women on the autism spectrum. Our mission is to provide effective supports to autistic females of all ages through a sense of community, advocacy, and resources. AWN's Project FAIM ( F emale A utistic I nsight M entoring) workshops will be the 1st of its kind. We plan to set up 5 Project FAIM Workshops across the USA which will focus on qualities specific to females on the autism spectrum. Topics will include: peer supports, adolescence, adult life, relationships, vulnerabilities and successful communications. Project FAIM Workshops will include active supports and information for everyone (autistics, parents, educators, etc.) The participants will meet renowned autistic females whereby gaining valuable insight. We will secure the Autism Women's Network non-profit status so we can continue to provide Community Events, online Forum support & E-Mentoring as well as our AWN Radio Show.


This has already begun to come into fruition through the Pepsi Campaign…

Sharon daVanport, AWN executive director, told me that, “This campaign has put AWN in contact with dozens of organizations, fabulous community minded projects and wonderful men, women and children from coast to coast across the USA.”

Isn’t that exciting!?!?! Imagine how this will impact our autism community as a whole!!

Not only that, AWN has received 9 invitations (including me) to host workshops across the US!! “Most of the invitations have included travel, lodging, and offers of a place to host the events! AWN has almost doubled the number of workshops which the Pepsi Grant would have provided.”

Can it get any better? Well, yes it can…

Sharon said, “The grant funds we were allocating to establish AWN as a non-profit will be minimized. We've had another 501 3C step up and say that they will back AWN through the process of filing all Federal, State, and trademark documents to finalize our non-profit if we do not finish December in the Top 10!”

So it appears that AWN will be winners (2x over) at the end of December whether or not we finish in the top 10!

There are three ways to support this project if you would like to vote for AWN…

VOTE Daily:
(1) On Facebook
☛ http://bit.ly/akQc0P?
(2) Text 101500 to Pepsi at (73774)
(3) Online at:
☛ http://pep.si/eg1mOG

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Posted in autism, AWN, community, facebook, Family Issues, Pepsi Challenge, proactive health, self empowerment, twitter, Unity | No comments

Sunday, 31 October 2010

2 Year Anniversary: Reflections on Autism

Posted on 18:17 by tripal h


Today is the 2 year anniversary of Sahara’s formal diagnosis of Infantile Autism.




I thought about writing about the huge accomplishments we have seen in the past 24 months… and let there be no mistake they have been huge!! We have left Catatonia in the dust!! Her speech, socialization, cognition, sensory, and every other facet of her being has exploded into this wonderful expression of life!! I am so proud of all of her hard work.

...Yes, we have come a long way, but we have an even farther way to go.

I thought about writing about the blessings I have found in the world of Autism… and let there be no mistake there are huge blessings. I have made friendships and have encountered opportunities that would have otherwise failed to exist. Read my list of blessings HERE.

...Yes, blessings are always there.

I thought about writing about the spiritual side of Autism… and let there be no mistake my daughter is more connected to God than I could ever dream of. However, I have learned to trust God more and that He trusts me even more than that.

...Yes, God is good.

I thought about writing about the fears I have endured over the past year… and let there be no mistake there are fears that I face on a daily basis; elopement, wandering, sexual predators, IEPs, civil rights, bullying, harassment…

...Yes, there are dark corners in my life.

I thought about writing about the struggles her sister has faced… and let there be no mistake that she had to face more in her short lifetime than your typical tween. She has had part of her childhood ripped away by this invisible monster called Autism that consistently puts her on the back burner.

...Yes, siblings have it rough.

I thought about writing about the strain in our marriage… and let there be no mistake there has been strain. The piles of doctor bills that insurance refuses to cover, the reduction to one income, and the never ending discussions about the never ending issues that circle our life.

...Yes, communication is key.

I thought about writing how the diagnosing psychologist was wrong is her prognosis… and let there be no mistake she was wrong! My daughter is talking, socializing and living a fulfilling life. She will go to college, have a career, a family and any other thing she so chooses to do.

...Yes, possibilities are limitless.

And as I thought about all of the things I could write, I realized that the most important thing to say today was that I would like to introduce you my daughter, Sahara Grace.

Sahara is six years old and just started kindergarten. She likes her teacher, follows directions well and declares that she loves school each time she gets off of the yellow bus. Sahara is funny, witty and even sarcastic. She loves animals, bats, watermelon, Curious George and Mr. Bean. She enjoys riding her bike, swimming and playing hide-and-go-seek. She has self determination, a sense of adventure and the patience of a saint.

Sahara’s best friend is her eleven year old sister, Emily. Not only do they share the common bond of sisterhood, they also share the passion for horses, dinosaurs, water activities, chocolate, the outdoors and just about everything else they venture to do; in fact, they are almost inseparable. Daily my daughters inspire me to be a better mother and person!


You can read more about our early journey (HERE) on the Autism Women’s Network.

I would like to conclude by saying that if you are a parent of a child that you think may be on the autism spectrum… you are not alone! Demand that someone listen to you about your concerns so that your child can start getting the services and care she/he needs. Then find a support group so you can get the care you need.

I have found that joining Twitter and Face Book to be one of the best things I could have done for ME. It was through a sense of community and knowledge that I was able to empower myself to stand up to the plate and become my daughter’s best advocate.

Read about the Signs and Symptoms of Autism HERE

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Posted in autism, facebook, Family Issues, fathers, self empowerment, Siblings, tweens, twitter | No comments

Wednesday, 13 October 2010

Open Letter to DQ... How my autistic daughter was abused by your employees

Posted on 19:35 by tripal h

Dear DQ,

This open letter is to let you know that my autistic daughter was insulted, mocked and experienced defamation of character by some of your employees this evening!!

As I was placing my order, my daughter was ordering beside me as well. How ever cute that may sound (and in my motherly eyes it was cute as well as a huge milestone) it opened her up for abuse by your employees. Because of her infantile autism she has a severe speech delay and speech impediment. For the first four years of her life she was catatonic and we have worked tirelessly to pull her out of her inner world and integrate her into the community. Tonight your employees demonstrated that I need to work harder at educating the general populace!

Tonight as she ordered her ice cream next to me in her broken speech (which sounds like baby babble), one of the workers imitated her sounds in a mocking manner!! Not only was I stunned, but so was her 11 year old sister and father! When I announced we could hear them through the speaker, we heard them burst into laughter. No apology!!

When we pulled up to the window, they didn’t acknowledge the incident at all. I am my daughter’s voice until she finds her own, it is my responsibility to speak up for her rights until she can do so for herself. So I informed the worker that I heard everything through the speaker and that I would like to talk to the manager!! The worker did not deny the incident, and meekly said, “Sorry” as he closed the window. I informed the manager that my daughter is disabled and has a condition called autism. I explained to him what happened and he said he heard laughing but was not aware of what prompted the laughter… he apologized and offered me a 25% discount.

A 25% discount!! Is that the compensation for my disabled daughter being subject to humiliation?

The latest statistic published by the government is that Autism affects 1 in 91 children!! So, to you that means that every 91st kid who comes through your lobby or drive thru is going to be autistic! Your workers must learn not only basic etiquette and common courtesy, but tolerance for those with disabilities. Is it not bad enough we have to fight day and night for the rights of our children with the schools, doctors, insurance companies and politicians… but now with the boys at the local Dairy Queen?

What those workers did was nothing more than bullying and defamation of her character. I have already told many of my friends in the autism community about this incident and many have already said they are going to boycott DQ.

I would like a formal and public apology to not only my daughter, but to the autism community as a whole. And would like to know what DQ as an entity would like to do about this?!?!

Below is the location and information on the order ticket.

Susan Richardson


Dairy Queen

2580 Bethal Road

Columbus, Ohio

Date: October 13, 2010

AIA003984099311

Server 122 Jeffery

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Posted in autism, community, DQ, emotional health, facebook, speech therapy, twitter | No comments
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tripal h
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