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Friday, 31 July 2009

NEVER Brush Face, Chest or Stomach

Posted on 11:59 by tripal h

What would you do if you found out you were given a treatment protocol to do with your young child at home without knowing that there were specific instructions that you needed to take? And that the precautions were not addressed with you before, during or after you began treatment? In fact, you didn’t know that there were any warnings associated with a seemingly safe procedure until almost a year later!

Remember the old speech and occupational therapist that I fired… their lack of professionalism continues to haunt me. Yes, I know you thought I laid this to rest; honestly so did I… but here we go again! Only this time I am asking the question, “What do I do with this information?”

Recently, we ventured to Nationwide Children’s hospital to obtain a formal occupational therapy evaluation. During the interview I was asked about previous OT exposure. I refrained from saying what was really on my mind. Instead, I let her know that there were unprofessional circumstances that prompted her dismissal.

Somewhere during this evaluation the evaluator asked about a sensory diet.

“A Sensory What?!?!”

I responded, “The former OT never mentioned a sensory diet to me before… she mostly gave Sahara dittos and puzzles to complete coupled with jumping on a rebounder and balancing on a balance beam. In fact, when I told her I read somewhere that my OT should be able to help us with eating issues she just looked at me like a deer in head lights… that is when I started to question their ability to effectively treat Sahara. “

The evaluator said that she had seen other children with similar sensory issues as Sahara and that she thought she would highly benefit from this sensory diet. She said that we should start by teaching us how to do brushing. I responded, “Oh, well, the old OT did do that much. She gave me a little white surgical brush to use on Sahara when she felt agitated… I was instructed to stroke it on her at my own discretion and to try it on myself because it felt good.”

I didn’t understand the expression on the evaluator’s face; but it was clear something in my statement rubbed her wrong.

She continued to explain that ‘brushing’ was formally known as Deep Pressure/Porprioceptive Method Protocol for Sensory Defensiveness. I was then given a handout explaining this protocol and the instructions on how to do this which included the statement, “Only complete if you have been instructed by a trained therapist!”. It also included specific areas of the body not to use the brush on; “NEVER brush the face, chest, or stomach.”

Why was I never told this last fall when given the brush to use at home by the old OT?

As we discussed this further, I was informed that after carefully stimulating the specific deep pressure receptors of the skin you are suppose to do joint compressions (both in a set sequence) on the child to reset the nervous system. You end the session with heavy body work like carrying a backpack, sitting on a therapy ball, being hugged or anything else that stimulates the child proprioceptively and by stimulating the child orally like eating crunchy food, humming, or using a whistle. Each of these steps has a science behind it and it critical to the entire process.

“IF you rub the brush on the face, head or neck you could stimulate a seizure.”

WHAT!?!?!

Yep, and being that Sahara’s ECG showed epileptic frequencies, this was apparently a very dangerous thing to do without specific instruction. Oh, and by the way, I was informed that if you brush over the chest you could trigger heart problems and over the stomach could stimulate internal organ distress.

I was appalled that none of this was explained to me by the former OT. My only conclusion is that she does not qualify as the “instructed by a trained therapist.” Frankly, I wanted to march down there and rip her a new one, but the rational part of my essence stopped me. But, I am left with this innate pull to do something.

What do you think?

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Posted in autism, brushing, child's health, Children's health, language, occupational therapy, proactive health, sensory issues, sensory processing, speech therapy | No comments

Co-Sleeping Offers The Building Block For Trust and Open Communication

Posted on 08:24 by tripal h
As some of you know, I am an advocate of the family bed. We happened upon this the evening of the day we brought Emily home from the hospital. I couldn’t tolerate that my tiny new baby lay in that cage of crib all alone after spending the first part of her existence within me; my maternal instincts screamed at me to pull her into the bed with us. As soon as I heeded this urge, I felt my anxiety melt away and fell into an innate rhythm of nursing and sleeping through the night.

In The Mother Consciousness I discuss how this prompted me to research the practice of the family bed around the world. I discovered that we were one of the few countries to displace their infants and children from the vicinity of the sleeping quarters of the mother; most infants of the world sleep within the close proximity of the mother in order to beckon the needs of her off spring. So, with my innate yearnings and the realization that this was only taboo in my backyard we ventured into the realm of co-sleeping.

Today, we live in a world where children are disconnected from their mothers & fathers for the majority of their day. Working parents send their younglings to daycare and nursery schools leaving them with a couple waking hours to spend together. If older children are not in school they are off with their friends or absorbed by all of the technology the 21st century offers them. My conclusion is that if you spend time sleeping together at least you have the opportunity to energetically connect.

Recently, I observed some teens that have both parents working out of the home. Now, I am not against the working mother. I was a working mother for the first 6 years of my motherhood, but I am against the parent that takes mothering lightly resulting in unsupervised children or children left with no moral development. A few of the things I saw these kids doing alarmed me... like lighting bottle rockets at their neighbor’s home and lying in the street during rush hour.

That evening during one of our twilight conversations my daughter and I discussed the behaviors we had observed. We talk about the safety issues, the lack of self control and even the boy girl dynamics we witnessed. We were able to have this discussion in the quiet of the night without contempt or the lecturing that typically follows such incidents; at an angle of respect, unconditional love, and self-empowerment.

This is just one of the many times that I understood that the family bed offered a sanctuary to my budding tween. Somehow over the years she has been able to disclose feelings and experiences in this setting that she hasn’t been able to process during the height of the day. It had become a safe haven where all judgment lay behind and it is understood that no matter what she discusses with me regardless of the topic is met with openness.

Could co-sleeping have prevented such deviant behavior in those teens? In and of itself…probably not, but it could have set the stage to reduce the need for attention seeking behaviors that could harm oneself or others. When an infant cries it is cueing the mother to respond, when the infant's needs are responded to appropriately and in a timely manner, the child learns that they can trust the primary caregiver which generalizes to all adults.

When children are displaced and forced to sleep in a separate room and cries are not satiated, they are being hardwired that they cannot trust the adults around them. I believe that when this occurs they learn early on that they have to have dramatic tantrums (lying in the street) in order to get the attention they deserve. In this case, negative attention is better than no attention at all.

I understand the need for independence and self empowerment, but I believe this can be achieved through other means than displacing our children from the close proximity of the mother during the sleeping hours. I also understand the concern of the marital bed, but let me reassure you that in no way has this inhibited our relations. In fact, this has created the opportunity to become creative and spontaneous in our connections. More so, the flirting and quiet sexual innuendos between my husband and myself during our daily activities has created a greater sense of romance; something I see missing from many couples that are far beyond the honeymoon phase of their marriages.

All in all, I have no regrets for the decision we had made in regards to our sleeping arrangements. In fact, I believe that one of the reasons that our youngest daughter (whom is diagnosed with autism) easily displays affection to us and people outside the family construct is because of the foundations laid by attachment parenting practices; co-sleeping and extended breastfeeding. I believe that each of my children have gained positive attributes that have been fostered through these practices.

Last night, however, after creating the perfect sleeping space, Emily decided on her own accord to sleep in her new room. It was a long night for us all… we could hear her toss and turn among her surrogate mothers (stuffed animals) trying to find that perfect nesting space. Then her little sister tossed and turned with the absence of her big sister.

This, too, is a task that I am sure we will all adjust to. And in the mean time, I will have to make a conscious effort to continue to connect with my daughter and offer opportunities for open communication based on trust and respect.
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Posted in autism, Childhood Aggression, Children's health, co-sleeping, confidence, emotional health, Energy, fathers, marriage, Pregnancy, proactive health, self empowerment, Spirit, The Mother Consciousness | No comments

Wednesday, 29 July 2009

GFCF Pizza Dough on a Stone: Recipe of the Week

Posted on 10:28 by tripal h
PIZZA - the forbidden food. Well, at least when you go Gluten Free... but, after much tinkering and grumblings from the homefront's tasting kitchen I have at last done it! The secret to this incredible gluten free pizza dough ... besides my awesome recipe.... is the pizza stone! I have tinkered with this recipe so many times with little success until I started using a pizza stone… now… I think this is better than the pizza that comes delivered to the door.

2 cups Gluten Free Rice Flour
½ cup Garbanzo Bean Flour
½ cup Cornstarch
½ cup Tapioca starch
2 teaspoon Xanthan Gum
3 teaspoon Baking Powder
1 teaspoon Kosher Salt
1 Tablespoon Olive Oil
2 Eggs
1 teaspoon Vinegar
2 teaspoon Sugar
2 cups Lukewarm Water
2 packs Gluten Free Yeast

(makes two pizzas)

Preheat oven at 425, with stone in oven.

Combine water, sugar and yeast; set aside for 5 minutes.

Combine rice four, garbanzo bean flour, cornstarch, tapioca starch, xanthan gum, baking powder and salt; set aside.

In a large mixing bowl beat olive oil, eggs, and vinegar. Add yeast mixture and beat. Add ½ the dry ingredients and beat. Add the remaining ingredients and beat.

Spoon ½ the dough onto a preheated pizza stone. The dough will be wet and sticky. Moisten the back of a spoon with water and spread dough into a circle as best as you can…. The dough will not be easy to work with until you actually put pizza sauce on it. Once you put on the sauce use the back of your spoon to shape it better. Push the edges in slightly to make the crust’s edge.

Top with Vegan Gourmet Cheese Alternative- Mozzarella and your favorite toppings.

Bake for 20 minutes in a 425 preheated oven.

(Warning: Before cooking, this will not look like very appetizing, but I promise the dough will rise beautifully in the oven and turn out better than any store bought pizza.)
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Posted in GFCF recipe | No comments

Tuesday, 28 July 2009

Our Moving Adventure

Posted on 11:27 by tripal h
For some reason our kids love adventures!

Not me, I am always content to stay in the same routine day in – day out. I like my comfortable life... Maybe that is why God gave me the gift of two fabulous highly energized daughters to motivate me to experience new escapades in ways I would never initiate on my own.

Our latest adventure, though, was not one on their terms… the adults in this family (Mom & Dad) decided to downsize and ‘lighten the load’ with a relocation. Okay, maybe ‘relocation’ is not the adequate term since we only moved several miles down the street. But, when children are involved it is dramatic regardless of the distance. With this new adventure came the adjustment to a new house, neighborhood, and lifestyle that will hopefully bring more opportunities for all of us.

However, I encountered the first hurdle in the weeks prior to the move as I started packing. I started with items that were not being used daily as not to disrupt the flow of life, but it wasn’t long before the boxes started to accumulate and went noticed by all. I filtered them into the garage to reduce clutter and the never-ending question, "How many days until we move?"

Next, I went to work on the toys, books, and belongings that we could live without for the next few weeks. That was when Sahara noticed a stuffed animal (that I am sure she hadn’t seen within the last 6 months) packed away in a banana box next to her bike… then sure enough I began to take notice that belongings were trickling back into the house.

Try explaining to a child with developmental delays that she is moving to a new house. All she could grasp was that the last time Mommy packed stuff into the garage, strangers came over and started taking her stuff away after they handed Mommy that green paper. Certainly, she convinced herself she had to rescue all she could.

This initiated daily car rides past the new house. This did seem to help, but I am sure she still had no clue why her comfortable life was being disrupted. Emily, on the other hand, started drawing diagrams and making lists. This is her way of taking control of a situation that she otherwise has no control over. This has been and will remain an effective coping skill for her. On the move in day, she met the new neighbor girl and was put at ease knowing she had a new adventure awaiting her.

All in all, the two days of transplanting our lives went smoothly. We did have one meltdown the second morning when my husband’s buddies arrived… stress was permeating the air!! I instantaneously noticed the signs and ran inside to get ‘the brush’. As soon as Sahara saw the tiny white brush she stopped and held out her arm. As I started stroking the bristles down her arm you could see her intensity melt away… this has become a great little sensory tool. (More on that later this week)

It is now Tuesday morning and we are still mostly living out of boxes… except the kitchen, which was my high priority. The computers are up and running now, too, after a long five day vacation (which was my husband’s high priority)... but, as I sit here composing I realize how much I missed the technology world of communication and necessities like banking; I even missed my virtual friends on Twitter.

I realize that as I orchestrate life around autism and motherhood, I sometimes live in a vacuum. Friends you had before the diagnosis have drifted away and friends that survived this bump in your road are far and few between…. So I am grateful to connect with other parents on a parallel journey.

As for the kids, all is calm in their world. And living out of boxes is just another adventure for them! This morning we arranged Emily’s new bedroom and frankly, if I was ten, this room would rock my world. However, as we finished the final touches Emily declared as she giggled, "Okay, I am ready for our new adventure… when are we moving again?"

 
 
 
 
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Posted in adventures, autism, Children's health, emotional health, Journaling, moving, sensory issues, sensory processing | No comments

Wednesday, 22 July 2009

A Splash of Normalcy

Posted on 08:28 by tripal h

We went swimming yesterday at a friend’s pool. I was feeling quite relieved to not have to worry about the teens at the city pool picking on the girls and was able to let me guard down. I sensed calmness within myself for the first time in a long time…

We splashed around and had a blast- I am sure none of us felt any worries in the pool yesterday! We played Marco-Polo and talked about the birds flying over head and the horses in the distance.

In order not to spoil their enjoyment, when I was done I sat on the deck patiently waiting for them to conclude their game. As I watched the girls play this intricate game they created, I was amazed at witnessing the normalcy of sisterhood; something I often intend for the both of them.

During this moment each would jump off the side of the deck into the cool pool, first Emily then Sahara. They would rush over to their horses (red noodles) and gallop away from the Water Monster that I am sure was real to them within the depths of their shared imagination; Laughter filled the country air and warmed my motherly heart.

I recognized for a brief moment that had there been onlookers they would not have been able to tell that autism was in their midst. In this moment we looked like a typical family having a typical moment in the pool. It was in this realization that I understood that Sahara was emerging from this label and Emily was emerging from loneliness of having her sibling experience autism.
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Posted in autism, emotional health, laughter, self empowerment, Siblings, The Mother Consciousness, Water | No comments

Tuesday, 21 July 2009

Homemade GFCF Taco Seasoning: Recipe of the Week

Posted on 13:47 by tripal h





For the perfect GFCF taco seasoning.... Combine all of the spices together and store in an air tight container. Use 2 tablespoons per pound of ground beef or turkey for tacos. Can also use in dips, casseroles, soups, BBQ sauce, or in any dish you want to add a burst of flavor.

2 TB Paprika
6 TB Chili Powder
3 TB Cumin
3 TB Garlic
1 tsp White Pepper
1 tsp Black Pepper
1 tsp Kosher Salt
½ tsp Cayenne Pepper
½ tsp Xantham Gum
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Monday, 20 July 2009

Birthday Presence

Posted on 05:59 by tripal h
There is nothing quite like having a birthday party with screaming kids and toxic food (known to others as pizza, pop, and cupcakes). But, I won’t go there today. You know, ranting about the food industry—but maybe later this week I’ll revisit that one...

For now, I’d like to focus on a very special birthday! It was Sahara’s 5th birthday yesterday.

Not many of my mom friends will understand this, but if you are a mom to a child on the spectrum you most likely will. In the past five years we have had many gifts exchanges; birthdays, Christmas, Easter, yes, even made up holidays just for the sake of mixing it up. But… there was always this solemn energy blanketing the festivities.

Emily usually unwrapped all of the presents and Sahara stared off in space or got up to play with the toys she found comfort in. You could hear the frustration in Emily’s voice as she would yell, "Sahara look. Sahara! S_A_H_A_R_A! Look it’s beautiful!" as her sister would just stay in her own world.

I always felt sadness in the depth of my heart that the well thought out gifts just laid there among the discarded wrappings. I would find myself begging God to help us find a way to bring her back to us. Maybe he was listening because somehow this year was different… This year Sahara participated!

She sat focused and actually ‘got’ what was happening around her. She delicately unwrapped each and every present (a total of six, which is alot)… with such awareness. You could see the anticipation in her eyes (something we have never witnessed in this child). Once the present was unwrapped she would give this faint smile of approval and pleasure (again, something we have never witnessed).

Emily sat their giggling while Sahara examined each and every gift before she moved onto the next. I quietly basked in the moment of witnessing both of my girls 'having a moment'. The rest of the day Sahara carried her new Tinkerbell and Cow doll around with her everywhere she went. She even carefully placed each in between us last night before she drifted off to sleep.

I think the greatest gift given on her birthday wasn’t in any of those pretty pink wrapped boxes, or laying between us as we co-slept, but rather in the essence of a young girl who joined us to celebrate her 5th birthday…the gift of presence.

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Posted in autism, birthday, co-sleeping, Food Sensitivity, laughter, Siblings, Toxins | No comments

Friday, 17 July 2009

Dinner and a Show

Posted on 12:54 by tripal h
We had an incredible week! We witnessed improvements in just about everything… from social play, eye contact, and speech to eating new foods. And yes, let’s not forget her expression of humor.

Sahara has always had a great sense of humor. Even when she was in the womb the midwives heard two distinct heart beats. My husband I heard them too…. We all sat their stupefied that we just might me carrying twins. However, after the ultrasound concluded there was only one baby in there we laughed for weeks that this child was going to be the comedian of the family.

Last night proved us right….

We were delighted when she actually joined us for dinner and ate, but the best was yet to come. When she finished eating she looked directly into my eyes and let out the biggest belch I have ever heard come out of a little girl. I know as mothers we are supposed to contain ourselves when redirecting our children, but I admit I snickered before saying, "Say excuse me."

"Oopsey!"

Okay, maybe I was not the mother of the year last night… when her attempt to say ‘excuse me’ came out ‘oopsey’ I laughed out loud as Daddy gave me the quick glance over his glasses that I was not handling this appropriately. (He is much better at going behind the closed door to laugh in these situations.)

Sahara clearly recognized that she has not only had me on the verge of tears, but her sister laughing out loud and Daddy sneering at Mommy as well. So… she takes another drink of water and pounds on her chest and yep…

"BBBUUURRRPPP!!! Oopsey!"

This time I snorted and her sister about fell off her chair from the hilarity of the situation. Daddy turned to her and said, "Sahara, this is not funny. We do not burp at the dinner table. Now, say excuse me."

"BBBBBUUUURRRRPPPP!!!! Oopsey, Daddy!"

I don’t know how he kept it together to say, "Sahara…"

"BBBBBUUUURRRRPPPP!!!! Oopsey!"

She wouldn’t stop and I couldn’t stop laughing. I had tears rolling down my checks. I suppose in hindsight that maybe they weren’t just tears of laughter… you know the ones that come when you are laughing so hard that you can’t stop. But, maybe tears of joy that this wonderful child was interacting with us and able to read the cues of everyone around her.

It is exhilliarating to see the fog lifting and witness the expression of life coming alive before your very own eyes!

(...and frankly, she was funny!)
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Posted in autism, emotional health, laughter, self empowerment, sensory processing, Siblings, Water | No comments

Wednesday, 15 July 2009

5 Years Ago I Gave Birth To My Sunshine Girl!

Posted on 10:43 by tripal h
As Sahara's birthday quickly approaches I find myself thinking about her birth. I can't believe it has been five years since my baby was born... where has the time gone? Anyways, in order to avoid my thoughts turning to how old I am getting I have decided to post a small excerpt from The Mother Consciousness about this birth experience....

"...Five days after my due date, we had the luxury of calling the midwives into the comfort of our home. I had been asleep for a couple of hours when I was awakened with the sensation to urinate. When I returned to bed I lay quietly next to my sleeping daughter. Focused on the tightening of my belly, I wondered if this was the beginning of true labor. When labor began with my first pregnancy it was obvious; my water broke and stage two labor contractions were upon me. This time I didn’t feel much urgency and birthing in the comfort of our home I was in no rush to go anywhere.

"When my husband heard me making a soft low pitched groan he decided he should call the midwives. He said he had only heard that sound once before and that was right before our first daughter was birthed. I was still unsure I was in labor even as the mid-wives arrived with my daughter yelling out the window, “Mommy’s having the baby! Mommy’s having the baby!” She jumped back into bed with excitement and I soon found myself, again, concentrating on the colors of the rainbow. I was birthing our second daughter in the comfort of my own bed just two hours and 50 minutes after I had awakened to go to the bathroom. With my husband on one side of me and my daughter on the other—this was surely a family moment to be cherished for eternity.

"In the quiet of the night we bonded with our newest family member. When my older daughter assisted the midwives in cutting the umbilical cord she joyfully declared, “Sister, I am making your belly button.” I then showered as she helped the midwives make the bed and dress her new baby sister. After the midwives packed up and left, my new family of four drifted off to an entire night of peaceful sleep. "

Happy Early Birthday, Sunshine Girl!!
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Posted in birthday, Home Remedies, Natural Birth, Pregnancy, proactive health, self empowerment, The Mother Consciousness | No comments

Tuesday, 14 July 2009

Barefoot and Naked... Is There Another Solution To Those Seams?!?!

Posted on 12:44 by tripal h
We spontaneously ended up at a Metro Park this morning. We had breakfast at the lake while we watched the molting geese. Within minutes Sahara sat in water and was walking about in her underwear. Honestly, I was relieved that I convinced her to leave them on, but Emily was embarrassed… "It is okay," I reassured her, "I have another pair of dry shorts in the jeep. Let’s walk back to the jeep, change her, then we can go on a hike."

Crisis resolved.

Soon we found ourselves on a 1.7 mile nature trail. We were enveloped by nature and I have to admit it felt liberating! Emily was eager to declare that she thought she saw a deer everywhere she looked. I am not so sure she saw even one the whole way, but she will adamantly deny that. Sahara wanted to pick up every stick and smack every leaf with it. Emily tried to rush her sister, "Come on! Look it’s beautiful!" I am certain she didn't mean anything in particular, but it successfully motivated Sahara ahead another 20 feet before another stick caught her attention.

As she bent over to pick it up, she suddenly plopped down on the dirt path to pull at her sneakers, "Sahara, our shoes need to stay on if we are going for a walk." She huffed and puffed, stood up, and took another few steps before she sat down and tried to get them off again. "Sahara, our shoes and socks need to stay on if we are going for a walk."

Emily thought she heard a baby deer and went running to the observation deck. Sahara and I followed, but by the time we got there Emily was ready to head back up the nature trail. Sahara stopped, sat on the bench, and had her socks and shoes off before I could intervene this time. I convinced her to put the socks back on inside out. I was hoping the seams being off of her toes would put her at ease.

Another mile to go….

I had to place my hand on Sahara’s back to keep her moving, but it was maybe another several yards before the socks and shoes were off again. I persuaded her to put back on her shoes; the socks ended up in my backpack. This lasted for a bit, then the shoes were off again and she was on my shoulders for the last 1/2 mile.

After an hour and a half we found our way back to the jeep and made it home safely. As I reflect, I am grateful that we could connect with nature without incident. But, I also am acutely aware that the whole sock and shoe issues disrupted the flow of the hike. Having a child who experiences sensory issues brings all sorts of challenges.

Certainly, fuzzy socks and rough seams go unnoticed by many. But, for a child with sensory issues, it is like sandpaper on your toes or your unmentionables. (Can you imagine?) Most days, regardless of the time of year, my daughter is barefoot and naked in order to be comfortable. We have, however, recently discovered that she will wear a dress without underwear and that seems to have adverted the whole unmentionables issue (for now).

I have, also, recently connected with a company, SmartKnitKIDS, on twitter that make seamless socks. I have to admit I haven’t tried them yet, but plan to place an order after we move. (I don’t want something that precious to get lost in the mail.) SmartKnitKIDS also just let me know that are working on a prototype for underwear. I have to admit that I have never been so excited about ordering underwear and socks!

If any of my readers have tried SmartKnitKIDS products please let me know your experience. I look forward to ordering both products in the near future and will be certain to write a product review. In the meantime, I am excited about the potential that Sahara may be able to wear these necessary clothing items with freedom from the inevitable seams that interfere with her daily activities!!

(PSST…they are offering a Back To School Contest you might be interested in. )
 
 
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Posted in autism, emotional health, Home Remedies, park, proactive health, self empowerment, sensory issues, sensory processing, shoes, socks | No comments

Narration Inspires Speech

Posted on 10:52 by tripal h
In May I fired our speech therapist for numerous reasons... one of them being that she told me that I enabled Sahara too much and that she wouldn't be talking by the age of 8.

So, with no speech therapist— we enter the summer with two paths to choose from—one was to be paralyzed with fear of losing the little speech we had while the other was to see this as an opportunity to be innovative with natural speech development. Being a ‘glass half full’ kind of mom I decided to embrace the opportunity.

Our new found freedom allowed us to venture wherever and whenever we wanted... but no matter where we ended up we found that there was always an opportunity for natural speech and communication.

We spent 2 months playing and enjoying summer while waiting for a speech evaluation through Children’s hospital. The assessment revealed that Sahara had receptive speech of a 24 month old and expressive speech of an 18 month old. (Note: Sahara will be 60 months (5 years old) on Sunday.) For some this news might be devastating, but not for me.

Instead, we continued to work on labeling everyday objects, comparing pictures, answering WH questions, yes/no questions, and following simple 1 – 2 step directions throughout our adventures and daily activities.

The opportunity for speech expression exists in every activity of daily living; and no opportunity went wasted. Sometimes I found myself mindlessly narrating my day, "I am cutting an onion with a sharp knife, I am putting the chopped onion in the salad bowl. The salad looks colorful… I see red tomatoes, green peppers, purple onions; oh there is a cucumber with seeds. Who’s that? Daddy is home. I missed daddy. Do you think daddy wants salad? I am setting the table. Should we eat our salad in a bowl or on a plate? How many plates do we need? One, two, three, four... there are four people here so we need four plates. Do we eat salad with a spoon or a fork?" Etc…

Narration has become second nature to me. With this constant input I have noticed an increase in her vocabulary and spontaneous speech. I was thrilled, but not surprised to hear Sahara said 13 'phrases' during a 45 minutes session with her new Speech therapist yesterday. Not words… phrases!

I want more bubbles, please.
The cat says meow.
No, doll house.
You’re welcome.
Oh no! It’s dark!
No shoes on.
I want mommy.
My nametag, please.
No no, yucky.
I eat apple on apple tree.
All done, nametag.
Want duck, please.
Moo, quack quack, woof woof, neigh neigh, bahh.

I expect that by the age of 8 she will not be wordless, but having conversations. I look forward to uncovering the things I long to learn about her... like, what she is thinking about when she looks up at the ceiling or what her favorite color is or how she wants her room decorated.
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Posted in autism, decision making, Home Remedies, language, proactive health, self empowerment, speech therapy, The Mother Consciousness | No comments

Monday, 13 July 2009

GFCF Summer Spaghetti Salad: Recipe of the Week

Posted on 06:13 by tripal h
This Gluten Free Summer Spaghetti Salad is great as a side dish or as a simple meal in and of itself.




½ Pound of Rice Spaghetti broke in thirds
½ Red Onion cut in strips
12 Cherry Tomatoes sliced in quarters lengthwise
1/3 Cucumber cut in 1 inch chunky strips
6 Fresh Basil leaves chopped
12 Asparagus trimmed and cut in ½ inch pieces
1 TB Minced Garlic
¼ Cup Gluten Free Italian Dressing
Cracked Pepper and Coarse Kosher Salt to taste
2 Grilled Chicken Breasts (optional)


Cook Rice Spaghetti according to package, rinse, and set aside.

Combine asparagus and garlic in a sauce pan with water and steam. Drain hot water and add cool water to stop the cooking process. Be sure not to drain all of the garlic off the asparagus.
While asparagus is cooking prepare onion, cherry tomatoes, cucumber, and basil. Set aside.

Rinse noodles one more time in cold water and place in a large bowl. Add veggies, asparagus, dressing, pepper and salt. Toss and serve as is or topped with grilled chicken breast.
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Posted in GFCF recipe | No comments

Friday, 10 July 2009

Reflection on the Sacredness of Childbirth

Posted on 06:43 by tripal h
An excerpt from The Mother Consciousness:


I soon found myself attending a woman’s group where I sat passively listening to a dialogue about pregnancy and birth experiences. “Why is it,” I wondered, “that every time someone found out that you were expecting they had to share their opinion on the topic?” As I listened further, I began to understand that the childbearing experience often was what someone else had dictated it to be. Many mothers mindlessly accepted other’s perceptions simply as their own.

On that particular night the topic covered planning nonemergency C-sections to orchestrate their infant’s birth around their husbands’ time off and opting for an epidural. “How barbaric is it that anyone would refuse an epidural? She would have to be sadistic or something, wouldn’t she?” complained one woman who had just found out that she, too, was pregnant with her first child. Just a few weeks pregnant and already she knew that she would opt for the epidural. Here I was, well into my fifth month, still exploring what the childbirth experience would look like for me.

I was diligently weighing my options, battling with what culture said was the right thing to do while having this conflicting innate pull to create a unique natural birth story for our unborn child. I found myself realizing that these women could not even consider for a moment that the birthing process was a part of the rite of passage into their motherhood. They sat there discussing this as a routine medical procedure while I sat there stupefied, almost enraged, that none of them considered the sacredness of the birthing process.
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Posted in Natural Birth, Pregnancy, proactive health, self empowerment, The Mother Consciousness | No comments

Thursday, 9 July 2009

Today's Gratitude List About Autism

Posted on 13:44 by tripal h


I am grateful that…



…God recognized I could handle the autism journey.
…autism gave me the opportunity to stay home with my children.
…autism gave us an avenue to eat healthier.
…autism has taught me how to slow down.
…autism showed me how to listen better.
…autism has given me the gift to be timely in everything I do.
…autism has created routine in my chaotic life.
…autism has brought my husband and me closer.
…autism taught me that labels are not people.
…autism offers empowerment to mothers.
…autism is a strength not a deficit.
…autism has brought out my ability to be patient.
…autism taught me to love unconditionally.
…autism has taught me to be frugal with my money.
…autism has created opportunities for great friendships.
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Posted in autism, Journaling, Meditation, poetry, self empowerment, Spirit, The Mother Consciousness | No comments

Wednesday, 8 July 2009

Homestead Park

Posted on 10:36 by tripal h



A poem by Emily and Mommy about our visit to the park today.





Horse
Outdoors
Moss
Enormous Dragonflies
Sand Volleyball Pit
Trees
Emily Helping
Amphibian Frog
Dozens of Cattails


Pond
A Mommy Duck
Running Sahara
Kids
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Posted in confidence, earth, emotional health, Journaling, poetry, self empowerment, Siblings, The Mother Consciousness | No comments

Tuesday, 7 July 2009

Searching for Biological Autism Answers: Dead End!

Posted on 09:20 by tripal h


Even after the neurologist maintained that a chromosomal deletion was insignificant, he recommended we talk to the genetic department to get more information on the findings. We waited months with sleepless nights to get in to see him, finally we were there.

The intake personnel asked why we thought we were there to see the geneticist, "Our daughter is diagnosed with autism and the blood work showed a chromosomal deletion, dad has the same deletion, mom has a different one, and the neurologist thought we could learn more about this from the geneticist."

Without hesitation he replied, "You will learn that these deletions are insignificant and not related to the autism. And, although, we know that autism is a biological disorder not an environmental one, we do not see any evidence of genetic causation in your daughter’s case."
My mind started mulling over these words…

‘Biological disorder’….
‘Not environmental’….
‘Do not see any evidence’…

He proceeded to take a thorough 60 minute case history. As we discussed our family history, I started to relax; somehow having the medical model finally listen to our story seemed to be relief in and of itself. But then, we had to wait another 45 minutes before the geneticist came in to see us. At some point I said to my husband, "If there is no evidence of biological component here… why are they wasting our time?"

Both kids were restless, hungry, and ready to bolt as the door opened. "Hi, Mr. and Mrs. Richardson…. I am ‘Dr. Geneticist’…. why do you think you’re here today?" Again, I explained what I knew of the deletion and his reply shocked me, "Over 80% of the time I can look at a child’s profile and determine the cause of the autism. We don’t see any of those indications with your daughter’s case; however, even though we know that autism is biological, we haven’t been able to know precisely where it is coming from. We are doing continued research to determine how it is biological and which specific gene it resides on."

WHAT?!? How can the geneticist say that there is autism is 80% biological/genetic but not have scientific evidence where the ‘autism code’ resides?

I craved validation, "If you are not finding any biological component linked to my child’s condition, is it safe to say that her condition is related to environmental toxins?"

Prepare yourself for what we heard!

"Some individuals are blaming environmental factors. I have not seen enough evidence that indicates that this could be valid…. There is no link between autism and environmental toxins." He continued to discredit the alternative venues of treating autism like chelating, GFCF diets, and other DAN! Doctor protocols. He even went as far as to state, "Chelation is killing kids while the people recommending it are making gobs of money."

I couldn’t believe my ears, but then again, his science and research is funded through this paradigm (psst…. Guess who’s making gobs of money too?). But to outright attack it befuddled me. I admit I question medical efficacy, but I also invite debate so that we might learn more about both approaches. It is when they find unison that maybe, just maybe, we will begin to progress towards finding a cause and more importantly find a cure.

Many are making ‘gobs’ of money off our children’s deficits from both paradigms. But, right now, my reality is spent in the sleepless nights wondering how we are going to pay for the co-pays, huge deductible, and the portion of the bills that the insurance company hasn’t deemed medically necessary.

The thousands of dollars in bills that we have accrued in the past four months is money that could have been utilized in a much more productive manner. The inconclusive tests results, countless appointments where the physician told us we are already doing everything they’d recommend and the referrals to additional hospital/medical services have racked up a bill and wasted valuable time that could have been utilized towards the recovery of my daughter’s autism.
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Posted in autism, Economy, Insurance, national health crisis, Toxins | No comments

Monday, 6 July 2009

A Letter to President Obama:Autism Advocate Requests Your Attention

Posted on 14:05 by tripal h






Dear Mr. President,

I can’t post-pone this letter any longer. There is a pestilence occurring among our children in America and we need your help!

My daughter was diagnosed with Autism Spectrum Disorder (ASD) last Halloween. Progress is slow, but steady. We do feel restricted in the process of addressing her needs due to the law not requiring the inclusion of autism on insurance policies, the narrow-mindedness of some deemed professionals in the industry, and the lack of financial backing.

Mr. President, many parents and professionals have differing opinions about how to address the needs of these children and what causes ASD. I am sure you are aware that this is a hot topic and tempers flare. I am not going to address the causation in this letter, but am going to acknowledge that I quietly (and often) wonder if the two injections of the RhoGam inoculations mandated on me during pregnancy caused our daughter’s disability.

I am going to also point out that since implementing the medical model during the past few months our medical bills have surpassed our personal budget. Unfortunately, I think that Autism has become an industry rather than an epidemic. It infuriates me that many are getting rich off of the woes of our children. But, this isn’t about me and the need to find someone to blame. I have made peace with our circumstance, and thank God that he entrusted me with this challenge. (He must have recognized something amazing within our family construct to bless this family with such an amazing journey.)

There are others I am most certain that have been called to action by a higher order as well. For instance, Angela Warner—a military mom of four (2 with ASD), is an inspiration to each of us on this journey. Her drive to alert you, Mr. President, and the mother of your children, Mrs. Obama, about this epidemic and how it is affecting our military families is inspirational.

Men and women who have committed their lives to protecting ours, are fighting an even bigger battle and dealing with even greater grievances on their home fronts as well. I am not going to pretend to understand what is like to be a military family and face autism, this you can learn by accepting her invitation to meet in early October. Until then, you can read more about her bravery and endeavors at http://www.autismsalutes.com/.

Age of Autism, a daily web newspaper of the autism epidemic, recognizes Angela as an Air Force spouse, mother, and advocate for our children. Today, I am asking that you encourage Michelle Obama to meet with Angela to have a discussion about what American families are going through.

It won’t be long before the 1 out of 150 kids with ASD become of age… that will bring its own set of challenges. If we don’t act now, more money and resources will be required to meet the activities of daily living for this fast growing population. I encourage you to help the children of today for a better future tomorrow. I, personally, have signed an open letter to you on the web encouraging you to look into the environmental factors that could be contributing to this debilitating disorder.

Thank you for your action!
Susan Richardson
Mother, Wife & Autism Advocate
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Posted in Angela Warner, child's health, Economy, Insurance, mercury and gestation, Mr. President, national health crisis, RhoGam, Vaccination | No comments

GFCF Protein Pancakes: Recipe of the Week

Posted on 09:07 by tripal h





1 Cup Brown Rice Flour
½ Cup Quino Flakes
1 Tablespoon Baking Powder
1 Teaspoon Pure Sea Salt
½ Teaspoon Xantham Gum
1 Heaping Tablespoon Raw Sugar
1 Egg
1 Teaspoon Vanilla Extract
1 Cup Original Almond Milk
1 Cup Strawberries chopped (optional)


Combine rice flour, quino flakes, baking powder, salt and xantham gum.

In a separate bowl, whisk egg with vanilla and almond milk. Add this wet mixture to the dry.

Fold in fruit if desired.

Use a tablespoon to transfer batter into a pan over medium-low heat. Allow the cake to bubble then flip, remove when golden brown on each side.

Serve with Earth Balance Natural Buttery Spread- original and 100% maple syrup.
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Posted in GFCF recipe | No comments

Sunday, 5 July 2009

Independence Day

Posted on 06:21 by tripal h
Today I intend for all parents, grandparents, spouses, siblings, teachers, neighbors, and friends to have the free will to determine what is in their own best interest and the freedom to act upon it.

Freedom… Independence… Liberty… Choice… Equality… Free Will...

… To choose what actions to take in the prevention and treatment of illness, disease, and conditions without fear that the opposition of political agendas will interfere.

… To choose how and whom to worship without contempt from others whose views may vary.

… To choose whom to love and to be within a committed relationship without worrying that the law prohibits the consummation.

… To choose how to protect the earth from industrial harm and take action without Big Money to interfere.

… To choose peace, love, and honesty over hatred, ignorance, and intolerance in every act you take.
 
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Posted in decision making, holiday, proactive health, self empowerment | No comments

Thursday, 2 July 2009

Purposeful Parenting Month.... Happy July!

Posted on 06:41 by tripal h
Purposeful parenting… that is exactly why I started writing this blog! To be purposeful is to demonstrate mindful intent.

I talk about this in my book The Mother Consciousness:

"At the onset of my first pregnancy and well into my motherhood, I had learned to mindfully provide physical, emotional, nutritional, and spiritual nurturance form my younglings…

"In the early twenty-first century many mothers are beginning to awaken to and become involved in movements such as holistic mothering and attachment parenting. Both movements promote peace, connectedness, and health within the family construct in order to promote the highest quality of life for the children (and the parents). It is my suggestion, that all woman have this drive within their souls and that the lessons of their foremothers reside in their collective unconscious; and when these lessons are heard and honored that is when true conscious mothering talks place."

During the month of July I ask you to pause and become more conscious in the daily mothering decisions you are faced with… become more purposeful in everything you do with your children! From the smallest task of tying shoes to the monumental task of fostering self-esteem be mindful in the moment.

Other than Purposeful parenting, July also is recognize as

Anti-Boredom Month
Cell phone Courtesy Month
Copious Compliments Month
Baked Beans Month
Bison Month
Herbal/Prescription Awareness Month
Culinary Arts Month
National Doghouse Repairs Month
Foreign Language Month
Hot Dog Month
Blueberries month
Recreation and Parks Month

HAPPY JULY!!
 
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Posted in Children's health, confidence, decision making, fathers, proactive health, self empowerment, The Mother Consciousness | No comments

Wednesday, 1 July 2009

The Ultimate Gift For Dad

Posted on 08:54 by tripal h
We went to Grandma’s house for a week… the children had a blast splashing in the pool, playing with Grandma, visiting the Zoo, and even going on an African Safari complete with hand feeding buffalo, giraffe, monkeys, camels, and more.

But, truth be known, it was Daddy’s Father’s Day present; a whole week to himself to do whatever he pleased… What filled his spare time didn’t concern me; I trusted him explicitly to appropriately utilize this heartfelt gift to whatever he deemed necessary to fill his spirit.

What did matter… was that he was able to step away from the daily responsibilities of juggling a family, a demanding career, and the many struggles a man faces when his child experiences autism.

He didn’t have to listen to, "When are you coming home?" a thousand times because I was so exhausted from the demands of the day and needed relief. When those 4:45 calls start… he knows he will have to jump out of the role of professional right into the role of daddy just so I could go lay on the bathroom floor for 10 brief minutes to recharge my own batteries.

He didn’t have to attend to my technical incompetence after he just spent a day at the office listening to a bunch of whining adults about their technical woes. I am sure all week he had a sense of relief when he came in through the door knowing he wasn’t going to have to trouble shoot why my outlook address book wasn’t syncing with my mailbox or why I couldn’t print the Webkinz adoption certificates.

We were tempted to get him a shirt instead that stated, "No I won’t fix your computer!" … somehow a week off seemed more appealing to his nature.

I am sure he indulged in a few cigars and drank a High Ball (whiskey and 7-up) while listening to nothing... quietness, I am sure, enveloped him. Certainly, this was a foreign sound from the ten years of child driven noises and 21 years with a woman who loves to talk. I am sure he basked in this delight!

(Yes, I suppose I am a bit jealous… but, I’ll get over it.)

I am just as certain that it was not all pleasure. I know my husband and know that in the recess of his mind he still worried about whether or not the therapy and doctor bills were paid… Whether or not our child was getting enough nutrition and the appropriate services… Whether or not he would ever be able to hold a meaningful conversation with his daughter… Whether or not the girls would be provided for if we were to die... Maybe, he even contemplated whether or not it would be easier on him if he left us (like in 85% of marriages that are faced with autism).

But, I am comforted that by Sunday morning he emailed me saying, "I miss my 3 women! When did you say you were coming home?"

I learned that by the time Sunday night arrived he desperately missed us. I suppose I am reassured that he found himself yearning to rummage around for Red Bear so Emily could sleep and that he missed the nonstop chatter of Sahara having to recite an entire scene from Shark Tales before she could nestle down for the night. I am glad that the house at times was too quiet for him.

I have come to terms that there are moments that seem so hard and painful in the world of autism that it seems easier to run away … but that is why each of us need this type of break now and then, to not only recharge our batteries, but to shatter this illusion and acknowledge that the grass is perfect on this side of the spectrum.
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Posted in animal, autism, emotional health, fathers, holiday, Home Remedies, Insurance, marriage, self empowerment, The Mother Consciousness | No comments
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tripal h
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